What you and Nick write, enables us to understand a little of what’s happening. The fear of the unknown for you and Tom, but also us, so far away can be scary. What Nick posted on “Medical Update” conveyed to us that for every problem there is a solution.
I realise we take the simple act of breathing far too lightly, and whilst
your support team is “breathing” for Tom, I find I am often ” holding my
breath”, waiting for an update, or news from your end. Your words make me
feel so very proud to have such a courageous daughter who bares her soul to give us some inkling of what you are all enduring.
It’s now 15 weeks down this uncharted road and reading messages from names I recognise really lifts me. To you “old” Chisi girls, “Filling the
World with love” is what you are doing. So many other entries make me
realise how powerful the written word is…to soothe, gladden, inspire, contemplate and uplift…and Tom…how immensely difficult it must be for you to verbalise your feelings, but cathartic at the same time.How is your book progressing?
Your description of Kiki and Roo entertaining their dad I can visualise
very clearly….brings to mind lines from a poem that Jane introduced me
“If you are in the garden, I will dress myself in leaves,
If you are in the sea I will slide into that
smooth blue nest, I will talk fish, I will adore salt.
But if you are sad, I will not dress myself in desolation.
I will present myself with all the laughters I can muster.
And if you are angry I will come, calm and steady, with some small and easy story”
( Thank you Jane for lending me that book by Mary Oliver. I hope you are
I can’t imagine the challenges and difficulties that face you and Tom
on a daily basis. Dad and I are thankful that you have the most wonderful
band of friends . It must be hard to cope when you are with Tom, but even
more stressful when parted. Just know we love you and urge you on. See you
soon and keep on sharing your roller coaster ride with us. And to TOM slow
and steady breaths,
Your loving Mum xx
DEAREST SALLY …